Cal Matthew

Meet Cal and learn about life a with Down syndrome

share your storyMacy GilsonMarch 24, 2022down syndrome, nothing down about it, the lucky few, down syndrome awareness, ex, upgraded to 47, welc, disability advocateComment

Tate

Learn more about Tate, an amazing warrior with Down syndrome!

share your storyMacy GilsonMarch 16, 2021down syndrome, nothing down about it, up syndrome, trisomy21, extra chromosome = extra awesome, t21, the lucky few, childhood cancer, pediatric cancer, childhood cancer diagnosis Comments

Genevieve

Learn more about Genevieve, an amazing warrior with Down syndrome!

share your storyMacy GilsonDecember 8, 2020down syndrome, nothing down about it, up syndrome, trisomy21, extra chromosome = extra awesome, t21, the lucky few, childhood cancer, pediatric cancer, childhood cancer diagnosis Comments

Ryder

share your storyMacy GilsonNovember 11, 2020down syndrome, nothing down about it, up syndrome, trisomy21, extra chromosome = extra awesome, t21, the lucky few, childhood cancer, pediatric cancer, childhood cancer diagnosisComment

Ashton

share your storyMacy GilsonOctober 28, 2020down syndrome, nothing down about it, up, trisomy21, trisomy 21, the lucky few, congenital heart defect, welcome to holland Comment

Navy

share your storyMacy GilsonOctober 14, 2020down syndrome, nothing down about it, up syndrome, the lucky few Comment

Cal

share your storyMacy GilsonSeptember 16, 2020down syndrome, congenital heart defect, heart warrior, open heart surgery, nothing down about it, up syndrome, the lucky few Comment

Hayden

share your storyMacy GilsonAugust 19, 2020down syndrome, nothing down about it, up syndrome, the lucky few, more alike than differentComment

Exton

share your storyMacy GilsonJuly 5, 2020down syndrome, congenital heart defect, heart warrior, open heart surgery, nothing down about it, up syndrome, the lucky few Comments

Cleo

share your storyMacy GilsonMay 12, 2020nothing down about it, down syndrome, disability advocate, up syndrome, the lucky few, more alike than differentComment

Edison and Lilith

Hi! My name is Jennifer and I am mom to two amazing kiddos-twins, Lilith and Edison. My husband, Adam, and I have been married for 6 years. We tried for several years to get pregnant, struggling with infertility and other health complications. So when the day came that we were told we were pregnant—miraculously, with not just one baby, but TWO—we were elated! We chose not to find out their genders until they were born.

share your storyMacy GilsonFebruary 16, 2020down syndrome, nothing down about it, share your story, CHD warrior, CHD awareness, the lucky few, IchthyosisComment

Olive

When my husband and I found out we were pregnant, we were so excited. We weren't exactly planning for a baby just yet, but we couldn't wait to be parents. I chose to take a blood test at 10 weeks to find out the gender, but we were surprised with much more. When the results came in at about 15 weeks, I got a call to come in to my OB’s office, and I did not like the tone of voice on the other end of the line. My husband and I reluctantly went to the appointment, expecting horrible news. We were told at first that it was Turner's syndrome, and then they thought it might be Trisomy 18 or Trisomy 21. I was crushed. What I took from our conversation was that we were not going to be able to keep our baby.

share your storyMacy GilsonNovember 25, 2019down syndrome, nothing down about it, the lucky few, NICU fighter, heart warriorComment

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